The Epi-Care technology is based on detecting movements. The devices therefore transmit neither video nor sound but register the typical movements of a tonic-clonic seizure, whereupon they alert the carer. Thus, the privacy is protected.
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It also gives the staff added time to help each other with practical tasks while Sanne holds breaks. If we didn’t have an alarm for Sanne, we would have to be by her side all the time. And that would mean a staff member would have to sit here at night, while the rest of the staff attended to other duties. I can’t imagine how we would manage without the alarm
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Tine has had an epilepsy alert from Danish Care Technology for more than two years. Social and health assistants Jette and Astrid of Tines care team are keen to see right away if she has a seizure. Jette says, "We are responsible for the care and can treat the consequences of a seizure as best we can when we receive the message of the alarm. Without the alarm, it would be much harder to detect the seizures, and an undetected seizure can be fatal to Tine."
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"But I was very worried she was going to get a lot of seizures that would not be detected if I slept at night." For a while Birgitte therefore put the alarm clock each hours every night so she could check on Christina. Of course, it was terribly tiring never to sleep through the night.
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The study shows that Epi-Care free and Epi-Care mobile detects 90 % of all seizures with 0,1 false alarms per day. The results prove that the data from 2013 are still valid. The technology is trustworthy, even in a busy life.
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Status epilepticus is when a seizure does not stop, or one seizure follows another without the person recovering in between. If this goes on for 5 minutes or more it is called status epilepticus. This can continue for more than 30 minutes.
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All epilepsy alarms send false alarms occasionally. But, some false alarms can be avoided if you are familiar with the technology of the alarm and you can operate the alarm correctly.
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The technology behind the portable Epi-Care alarms is clinically tested. This means that Danish and German doctors have systematically and scientifically studied the alarms effect on people with epilepsy.
The results are published in the scientific journal Epilepsia. The Journal publishes original articles on all aspects of epilepsy, clinical and experimental.
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Epilepsy occurs in all age groups, but it most often occurs in childhood. Half of all people with epilepsy are diagnosed before the age of 10.
The most children’s seizures can be effectively controlled with medication, however for some, medicine is not enough to control the seizures. They and their families must live with unpredictable epileptic seizures.
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There are many different types of epileptic seizures. The tonic-clonic cramp is well know, and the one people tend to think of when imagining a epileptic seizure. It has been known as a ”grand mal” but that term is fading out of use.
The tonic-clonic seizure comes it two phases. The seizure starts with a sudden rigidity in the body called the tonic phase. One may feel air being pushed out of the lungs, and it becomes impossible to move. Hereafter one loses conscience, fully or partly, and falls to the ground.
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... To give you some background as to why we chose the Epi-Care Free, it is necessary to first explain that our son, Simon, is autistic with learning difficulties and normally lives in a specialist care home but also has home visits for a few days each month, occasional longer stays such as at Christmas, and comes on holiday with us every year.
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